Introducing GeorJay Tubie

 It’s currently Wednesday and I got the G/J tube (which I am fondly calling Georjay Tubie) last Friday. People who have had them told me that the pain is worse than you can imagine or expect after getting the tube placed. I thought hearing this would prepare me, but I can honestly like them say it is worse than I anticipated. Movement was killer. Like straight up to a 10 on the pain scale and not moving is still a pretty strong 7 on the pain scale. I pride myself on independence, but I didn’t dress, move, or go to the bathroom alone for the first 3 days. Even with help the pain and effort was horrendous. 

I must have some really good abs because cutting a hole through them is so noticeable. Who knew that most basic movements are actually an ab workout too? 

Home health came the first 5 days to manage the tube, do labs, and help me. It was nice to be able to learn from others and also not have to take it all on myself. I also had a fabulous dietitian from my CF team who checked in with me daily and dealt with all the hoops to ensure I was being properly cared for. It was a little daunting when the decision was made that I could handle it on my own now. My labs came back good and the home health team expressed full confidence in my ability to manage it on my own. It also feels like progress. 

I am very lucky to have people around who support and care for me. I’m lucky that a procedure like this is possible. I am more optimistic now that the pain has eased a little that Georjay will be very helpful for me going forward. I have felt the difference already as my body is receiving the nutrition it’s desperately needed. I hope to enter a season of stability with my health and managing CF armed with my new friend.